Day 16/90: Rock song to PM Tic Toc Tic Toc to a dying clock

The video rock song we create here says it all. Please forward to everyone, this one I need to be viral and that needs help.

Work was done in 2 hours by Roy Kossena. A great friend. His business is turning stories into songs, get in touch with him at roykossena@live.com.au He would love to work with you on a love story, a birthday story, a special message story or like me a political plea for a meeting story!

Pain 0/10 Mental Health 10/10 Physical Health 5/10 Life Enjoyment 12/10

Day 15/90: Christmas Plea to Prime Minister for a meeting, it would be easier to meet Santa!

Dear Mr Prime Minister, I attach a youtube link I hope you find informative,entertaining and a call to action. Can you seriously ignore an Australian who is trying so hard for so many, come on, its nearly xmas.

Hi everyone, this one is a bit early, day is only half gone but it is a winner. Clear schedule. I have had a very exciting media discussion/negotiation this morning that will add to my momentum but is shrouded in secrecy. If anyone can assist with my PM quest, letters, calls to his office or even better appeal to his better half his wife go for it. Nothing like a Honey talk to Shorty whispered in his ear………………….

Today is going to be about a bit of retail and getting Christmasy, it is my sisters birthday, the dogs may get a sit in the park, I at least don’t run or walk fast so they can suffer alone with me. I also have a great book on my Kindle that is junk fiction but will rip through a bit of this.

Wont draw out the note, love the following, we are just about to hit 100,000 blog hits and we have 23,000 petition signers. Momentum on this front would also be awesome. Also have had no approach from Iconic Ozzies who wish to help advocate for the next 12 months, so keep looking.

Pain 0/10 Mental Heath 10/10 Physical Health 5/10 Life Enjoyment 10/10

Day 14/90: Plea to meet PM and will pay my tax early to help your budget!

Dear Mr PM. As a result of ending my career as a successful executive in Feb, not only did I pay an embarrassing amount of tax last year, I have also a PAYE carry forward due to be paid in May. It won’t fix your budget but it will certainly help. I am prepared to pay this early and forgo investment earnings from it the day we meet. Lets get commercial and you help me help you, and the Budget issue all in one go.

Back to all interested parties,

I attach a link to a great Daily Mail online article done today. Well done Daniel responding to my call for some help to further get the message across to the PM. I hope you like the article and photos. Dan did this starting with a call at 8.30am and a few more during the day. What a great online outcome. All media requests to help are welcome.

http://www.dailymail.co.uk/news/article-2856907/I-wonderful-life-time-choosing-dog-Missi-s-ears-hands-family-Australian-dad-planning-die-spending-touching-moments-son.html

Went to the oncologist today and we had a good chat. He is away for a few weeks in Dec so we are doing a bit of just in case planning. Have all I need just in case e.g., for emergency lung drain etc, normal type stuff!

Pain 0/10 Mental Health 10/10 Physical Health 5/10 Life Enjoyment 10/10

Day 13/90: Open Plea to PM, Goodbye chemo team and great night at Crown

Dear Mr Prime Minister, As you are fully aware I have a very deep need to speak to you on freeing up your party to discuss Dying with Dignity by enabling them to exercise a free conscience and at some possible stage a free vote in any discussions they may have with constituents, press, their families and loved ones on this topic. The embargo placed on all Liberal members by your line “this government does not support euthanasia is simply no longer acceptable” in terms of leadership response. Surely you can see that? Even more so when many of your cabinet members do wish to discuss the topic. Through your office I have a letter stating it is an important topic that should be discussed at the highest levels. Well doesn’t get higher than you and your actions are hindering freedom of speech on this topic. I have but weeks left to live quite possibly, and certainly Feb should see me out. I promise you it will be a respectful, honest discussion and though I am not a head of state, a corporate giant or a poll and media strategist I am very special and this is my highest end of life priority outside my family. I am sure we would both be richer for the experience of meeting.
Regards, Peter

And back to everyone who is peeking on my mail to the PM………

Today Elizabeth and I went to the hospital who have looked after me for the last 6 years and said our goodbyes to the Day Oncology team as we have stopped palliative chemo. I felt a bit like the space man floating outside the capsule with the earth way down below and I just pulled out a hose. Quite a strange sensation. Hats off to all carers with a special bow to oncology ones, very special.

Last night we had a great evening in Crown. Dinner at Nobu which seriously is worth saving a life time for, you need to! Best Sushi bar outside Japan. We then had a blackjack session or I did, and I risked $500 and left the blackjack table after 40 mins with $470. Some would say I lost $30, I say I won $470. Or a longer bow is I was always expecting to lose $500 and came away with $470 so really I won $970. Like politics, depends on the spin. We then snuggled up in the great Crown beds, watched a movie with the big south bank gas ball exploding on the hour outside the window and then snoozed off. A great Sunday, and some life insurance $ well spent.

Mr Prime Minister, If you have read this far, happy to shout you a dinner at Nobu as a backdrop to our discussion. I can only eat slidy food and it is slidy.

Pain 0/10 Mental Health 10/10 Physical Health 5/10 Life Enjoyment 11/10

Day 11/90: A new Peter, Samuel Peter Kennedy 27/11/14, 3.49pm 9.1lbs 53 cm

Our very good friends Greg and Chelsea Kennedy, of the Perth Kennedy’s said a while back that if they had a boy they would give him Peter after me as a middle name. At the time I thought that was a pretty nice thing to think about but did not dwell. Well Samuel Peter is now part of the future. What a great honour to have friends do that. Elizabeth feels like an Aunty, Mitch like he has a little brother and me well it is just special. People get to live on in memories but there is one person who like it or not will carry a bit of my memory in a unique way. Imagine he will probably live to be 100 and I bet will be fluent in Chinese by the age of 5. I find it also exciting to think about the relationships that may form around the edges of this over time. I will post a photo when I get one.

Spent yesterday driving up to Echuca to farewell Patsy another great person. It was a fantastic drive, beautiful day and a really good funeral. She would have been very happy a long and interesting life well explained with mirth, humour, respect and sadness.

Still have not heard from the PM re a chat but am making some background moves on it. I don’t have much time so will need to push hard whilst not creating angst for him. Tomorrow checking into Crown Towers with Elizabeth for the day/night to relax and maybe polish my blackjack skills. I am feeling lucky!

Pain 0/10 Mental Health 10/10 Physical Health 5/10 Life Enjoyment 10/10

Day 9/90: Terminally ill man and Victorian Politics voting, use your vote well.

The Victorian Election on Saturday is something I feel compelled to advise my view on even though Dying with Dignity is a cross party issue.

I would ask you to consider the following.

1. If Fiona Patten of the Australian Sex Party is in your electorate vote for her. She has a great chance for the upper house and will introduce a mandate for change to Dying with Dignity laws in Victoria if elected in the first 90 days.I have her promise and she keeps them! Her party is multi platform and progressive and as it is likely that Victoria will have a balance of power problem, Fiona would be a great reconciler and one of common sense at that sort of table.

2. Next Vote GREEN’s. They are committed to change and again Dying with Dignity. It is very likely they will win balance of power so lets make it clear to all it was not an accident. Their progressive voice will ensure Labor and Liberal end up doing something rather than bicker.

3. If you really have to go major party, go Labor. They support conscience voting on Euthanasia and they have stated existing laws need review. You don’t get much from them as a terminally ill person but it is a crack in the fabric and just maybe Gavin Jennings (Health) will surprise us all with action beyond that promised. He wants to I think.

4. Don’t Vote Liberal, on this topic they condescend, won’t meet and will not even contemplate change. No point going on their flaws are manifest and clear to the terminally ill and incurably suffering.

These are views I offer if you see the myriad of policies confusing and really see change to the medical treatment act to enable Dying with Dignity in Victoria enacted as important to you and your family. It presupposes you are fed up with the last few state governments unable to do anything of significance due to no real power. It works on the logic that the Greens should and we need them to, win the balance of power in the upper house.

I cross my fingers for Fiona Patten as I can’t vote for her and will cast my green vote in Hawthorn, passionately and proudly believing very strongly in what they may be capable of doing if you let them in. Feel free to go viral with this idea if you like it.

Pain 0/10 Medical Health 10/10 Physical Health 5/10 Life Enjoyment 10/10

Day 8/90: Interview with Good Weekend and dinner with funders

What a great day. I spent a lot of it today with my family, film crew and Jane from Good Weekend magazine who is preparing an interesting piece on our story. It was all happening. My film crew filming Jane’s photographer filming her interviewing us. She was great to talk with and the photographer took some hopefully great stills for later memories. Jane is approaching the interview as a double header meeting, today with a follow up tomorrow to mop up the pieces. Bodes well for an interesting story and some new angles. Jane also has a connection to a special friend we have met along the way, Marilyn and her father is Bill so there is a bit of him in this one as well. Meant to make sense to a few.

Elizabeth and I also went to dinner with 3 of our crowd funding people who were able to meet the date and had signed up for a dinner. Dinner buzzed with film crew and a great atmosphere and table at http://www.elyros.com.au in Camberwell. New, written up in paper and if you like Greek food a must go. It is recently opened great wine list & food (some nice and slippery so easy on the swallow) staff/team and prices/value. Also a great farewell liquer with the good greek coffee. Our guests were Tim an ex Coles Executive and long time friend, Chris a teacher, ethics expert, writer and member of the rationalists society and Michael a 24 year old soft ware and apps  designer who has managed a difficult end of life process last October with his mother. We had a fantastic conversation around Dying with Dignity, politics, choice, freedoms of the individual and ideas on next steps to raise awareness.

Two ideas were maybe a Dying with Dignity app/game related to our Australian Federal quest for legislative change, but so good it goes viral and Mavens. How do we find one or 2 Oz celebrities who in the next 12 months will join me to not just be ambassadors, but to positively convey the message of a bill in federal parliament to enact Dying with Dignity laws and recognise the rights of the Terminally ill and incurably suffering so shoddily treated today.They can help highlight the need for all Australians to take a stand with politicians as these people are so good at social influence. Think, music, sport, racing of all sorts, actors and TV celebrities even gutsy big end of town CEO’s. Who knows these people, feel free to put me in touch. Elizabeth did mention she saw Geoffrey Rush at the post office but did not think to say hi!

One really interesting discussion was how politicians colour the topic of Dying with Dignity with their own personal religious view yet who has heard politicians tell us their religious view as part of an election campaign and the impact their views will have on us. They just tell us what they will start, stop and spend. Maybe we should ask more?

Pain 0/10 Mental Health 10/10 Physical Health 5.5/10 Life Enjoyment 11.5/10