Everyone asks how I am doing. So the basics are that I look normal so can get away with anything. I do have trouble swallowing due to oesophageal tumour pressure but manageable. I am however now needing to work re eating to keep above 70KG which is my ongoing aim. I far prefer drinking! My body is interesting from a muscle point of view. Now having had little exercise for 9 months muscle tone and muscles are pretty stuffed. I look good if you like saggy and skinny. This leads to not as much stamina but again manageable. The real annoying one is I always feel like I am breathing through a wet pillow. Again manageable but very restrictive re activity. I need to go slow and especially if I have ben sitting for a while I have to get going slowly or it gets real hard to breath. Much more prevalent in the evening. I love my new surgically enhanced voice. So thats about it, not a big drama and I am keenly looking forward to packing lots in until I hit my Feb 1 still tic tocing goal.
In my activity to change the law to enable Dying with Dignity, it is very necessary to not disenfranchise any particular political group but I am up for helping anyone who is firmly behind my goal. I am also, through Richard Di Natale and Alannah MacTiernan comfortable in this at the Federal level. As a Victorian however I have to vote in state elections, which the policy story coming out for is light. An example of state based help is the link below. Really have a think about Fiona Patten and her Sex Party team as they do strongly standup for Dying with Dignity, as do my friends the Greens. If you want to learn a bit more hook into this picnic, link below:
Then still with the Victorian theme. On radio a few weeks back the Victorian Opposition Health Minister Gavin Jennings indicated he saw a need for changes to the laws in Victoria around Dying with Dignity as follows
No media followed this up! Lets all contact him, media included and ask why not put referring Dying with Dignity laws to the Victorian Law Reform Commission if elected as part of the next few weeks debate and policy. Napthine has made clear he will not and won’t even meet with me till post the election if I last that long. Gavin is contacted at, email@example.com and his people told me he reads and responds to email, I sent him one already and am excitedly waiting.
Pain 0/10 Mental Health 10/10 Physical Health 6.5/10 Life Enjoyment 10/10