Month 5, Day 12: Quebec passes Dying with Dignity bill – Historic

Hi, Back in Melbourne and now with my driving license back, never thought I would live long enough to have that happen. After The Project I rang Steve Price and he is doing an interview with me on his radio station 2GB Sydney, this evening btw 8pm-12pm. Should be a good chance to get to a few Sydney supporters and I may be able to let out a great support surprise. I am still having a lot of fun and am relatively fit. My breathing however is showing signs of getting hard under exertion so the little oxy bottle is going to start being a feature. Mitchell is into exams so don’t worry about terminal illness, this is real pressure:) A friend has helped me create a Facebook thunderclap (who knew about those) to try and move the petition along, anyone with ideas how to change the game on this so I can get real numbers scale, and can do so would be hugely appreciated. I am also working with an advertising company based in Adelaide with London partners around what may be possible with a public campaign and funding process for it.

Click here to read an article which shows Choice at end of life is a real issue that can be solved, as it was in Quebec Parliament last thursday! Commonwealth country, lots of similarities and they have found a way to reflect in parliament what so many need. Choice for terminally ill patients. Well done Canada, please tell our politicians. As yet PM and Vic Premier have continued to ignore my letter too them, if you know them please give them a prod. Australia may be open for business but it is not a great place to die.

Pain 0/10 Mental Health 10/10 Physical Health 8.4/10 Life Enjoyment 10/10

Month 5, Day 10: Reflection

Hello. A very sobering day. Yesterday’s media generated a wave of activity that was overpowering , amazing and rewarding. Old friends reconnected, my original chemo nurse who used to come to work super early so I could get out of hospital without a moment to spare got in touch, people with sad and desperate stories around cancer and no end of life choice made contact and the waters of the river of life flowed mightily. 3000 people visited the blog about 1500 signed the petition and it has continued on today.

I do hope all this does get to politicians and change can grind forward but it seems we are so poor at making the real issues matter, better debating leadership woes or union expense scandals or even the country hinging on an iron ore price under $100 a tonne

had a great time in Port Douglas and looking forward to getting home tomorrow. I think proximity is an important part of this journey, to things familiar and close, especially my cocker spaniel who people are now calling lassie.

Must be in a melancholy mood for a change, it won’t last. Lots comming up, thanks for the reads and posts

Pain 0/10 Mental Health 9.5/10 Physical Health 8/10 Life Enjoyment 10/10

Month 5, Day 9: The Project

The Project on 10 at 6.30 tonight screens Shorts Dying with dignity. Hope it makes a difference. The Zone article in The Age has brought record blog views and petition support. Online q&a was very interesting, some great?

If you missed the story, click on the link. http://tenplay.com.au/channel-ten/the-project/extra/season-5/euthanasia

Pain 0/10 Mental Health 10 /10 Physical Health 8.3/10 Life Enjoyment 11/10 (got my car license back after 6 mths, thought I may never drive again but I have)

Month 5, Day 9: The Zone

Thanks so much for your interest. My story and rational is clear from the article link to be attached. If you care to learn a bit more about me the first blog sets the scene and the journey goes from there. I am asking you to take the issue Dying with Dignity very seriously and take action through support of my petition and the wider extension of it so real scale is achieved. I am doing this as I know the Pallative value of medically assisted death as a choice and whether I avail my self of it or not it is a powerful force.

My plan to create change involves coming publicity hopefully in both the TV and political space but it is each of you who I am really relying on. Don’t allow yourselves to risk getting to my late stage to say this is wrong, Australia should be as great to die in as it is to live in. Without change it is not.

I hope you find my journey and the introduction to my incredibly supportive family as a cause of comfort, thought or action. Don’t be sorry and stay in touch.

If you missed the article, click on the link below. http://www.theage.com.au/national/death-the-right-to-choose-20140608-39r5u.html

Pain 0/10 Mental Health 10/10 Physical Health 8.3/10 Life Enjoyment 10/10

Month 5, Day 6: Denis Napthine won’t talk

In Port Douglas for a few days with Eliz and Mitch. Excited about article in The Zone Monday  telling more about the story why choice at end of life is so important and I think special,Google the Age zone. Online ? From 12 for an hour. I think Dr Rodney Syme may also join me in the responses online. Ask some controversial ones, and I will respond.

Had a great dinner talking about memories of a trip when Mitch was 16 tonight. Also had a note from Joan Kirner ex Vic premier wishing me well and welcoming the desire to bring choice. Strange the currentPremier won’t even talk to me. Petition over 1500 need 98500 more!

Pain 0/10 Mental Health 10/10 Physical Health 8.3/10 Life Enjoyment 10.8/10

Month 5, Day 4: Farewell drinks for Ian McLeod retail guru

Rest day, Chemo does that. Farewell soiree with for my OLD CEO boss ,will be fun and funny as the 50 or so look at me. Another case of killing the Elephant in the room and they are a great team. Might get a few more petition signatures.That is now at 1300 so keep going.

A suggestion has been made about crowd fund some public advertising. May be a good idea and I have done a lot with road billboards in my past lire thing Love more vroooooom on a red background. Vpower worlds greatest fuel! Thoughts re crowd funding and advertising the petition welcome.

Off to Port Douglas tomorrow for some family cuddle time and warmth. Next week is a real biggie keep looking.

Pain 0/10 Mental Health 10/10 Physical Health 8.2/10 Life Enjoyment 10/10

Month 5, Day 3 Big Chemo, lost iPad

Biggest thing today was big chemo dose in hospital. I always take a bunch of roses, today long stem red ones. The nurse who filled me up is going to read this, thanks you were great, even when I panicked and the hospital was turned up side down because I thought I had lost my phone. Find I phone app, chemo orderly said give it to me, yep ,under the Chemo chair! I texted ABC also to learn the film and radio from their visit was played in a number of states last Thursday, they are sending a copy so I will load, I saw nothing of TV did anyone? I also had a great business chat with a business friend I am working with in London, that went well. Also lots of sleeping off the Chemo, hence why I am buzzing now and a great dinner with Eliz and Mitch and the dogs. Can’t say that is not balanced. Saddest thing I learnt a really close friend from Guam days has some big cancer challenges as well, love to Fred and Diane and Jen. On a bizarre note I only ever thought I would die twice when scuba diving, and both times Diane was my dive buddy, hole off the reef in Guam outside the harbour and blown of the edge of Palau in a drift. long fun stories of their own, don’t we have so many. Reflect!

Pain 0/10 Mental Health 10/10 Physical Health 7/10( chemo watch this one bounce back) Life Enjoyment 10/10

 

Month 5, Day 2: Form a bond with Dr Rodney Syme

The Project showing now not till Tuesday week. Blood test today was a great one, didn’t feel it.

Met today with Rodney Syme about how we may be able to further the awareness of the need to change the law to enable people with terminal illness to have choice around how they die. We also talked further about the progress of my illness and he reassured me with his advice that he will guarantee me control over the end of my life and provide medication if it becomes necessary. He advised me the best medication would be Nembutal taken by mouth. This will give me control over how when and where I die.

Pain 0/10 Mental Health/Health 10/10 Physical Health 8.5/10 Life Enjoyment 10/10

Photo with Rodney, he has more hair!

Image

 

Month 5, Day 1: Should I write my story?

Wow into month number 5 of 9. No telling how far this will go. Today saw Xmen with my little sister, fantastic, not the guy eating pop corn and farting next to her! Intro clips have a movie with a girl wearing an oxygen prong and she says something like “i am a grenade, and when I go off I will do a lot of damage” it is of course around the waves her dying creates. Thats why we need to deal with things in the here and now. I have drunk lots of water today, now wine as it is after 5, because among other things in a busy day tomorrow I have to do a blood test pre the Tuesday big chemo. As always at Cabrini the best Hospital in the world, I am a bit bias. Last time nurse had to do 2 goes as I was a bit dehydrated, won’t get to prick me twice tomorrow. Spent today also polishing off my life story. Palliative care afford me a lovely lady, Francis anon who comes and takes down my verbal life time wanderings. It gets quite hard re is it a good idea and I am still toying with do I pass it to my family or not as I am plagued by the ? of how will they receive it, and could I make a post death misstep with an accidental comment or one that was expected but is not there. Don’t know. Thoughts welcome. Really big interesting week this week stay in touch.

Pain 0/10 Mental Health 10/10 Physical Health 8.5/10 Life Enjoyment 10/10